– Book Update –

Seven years ago this month, 47 Strings: Tessa’s Special Code was released out into the world. I never imagined that a simple YouTube video would quickly turn into a hard copy children’s book.

And guess what friends? I have BIG news to share with you…

After seven years, five reprints and many reader requests, 47 Strings is finally available as an e-book! We are excited to have this option available for readers!

Over the years, 47 Strings has been shared in homes, schools, organizations, welcome baskets, clinics and libraries across the United States and in various countries around the world.

To learn more about 47 Strings: Tessa’s Special Code, click here. Thank you for following, reading and sharing our message about what it means to have an extra chromosome.

Yet

She can’t use a jump rope.

She can’t jump over a low hurdle.

She can’t do an agility course.

She can’t run a mile.

She doesn’t control her impulsiveness.

These are some of the concerns raised by a team member during this year’s annual IEP meeting as we prepare for third grade. I get it. Her size, lack of skill, coordination and stamina could be cause for worry. Don’t get me wrong, I’m grateful for a team that cares so much for her and her safety.

However it looks different from our perspective. If we withheld her from every activity that made us worry, she would likely never leave the house. We’ve had to challenge ourselves as parents to see beyond the fear and the worry in order to open more avenues of success.

In life, we have two choices–we can either settle or we can find a way; something we learned quickly after hearing that our daughter was born with Down syndrome. While one may focus on the negative, we chose to alter each limit with one simple word.

She can’t use a jump rope…yet.

She can’t jump over a low hurdle…yet.

She can’t do an agility coarse…yet.

She can’t run a mile…yet.

She doesn’t control her impulsiveness…yet.

You know what else? She can’t do her own laundry, cook a meal or drive a car…YET. She can’t write her name in cursive or do long division…YET. She can’t babysit or ride a bike without training wheels…YET. No, not yet; just like other kids her age. But we believe she will. Maybe not today or tomorrow. Maybe not next year or the year after. But when she is good and ready.

And should those things never come, we will be proud knowing that she gave it her best shot. We’ve seen her jump hurdles higher than the ones you’ll find on an agility coarse, and those are the ones that matter the most to us. If we only focus on the things we can’t do right now, we will never know what we can truly achieve.

As for all of the these things she can’t do now…she just hasn’t done them yet. Her capabilities far exceed her limitations.