Yesterday was rough. Over the last week, we have been noticing that Tessa just has not been herself…eventually realizing that it was time to call her HEM/ONC doctors.
Her body was covered in petechiae, her mouth was bleeding with sores, her skin was pale, she was too weak to play and she was visibly in pain. I knew she was symptomatic.
We took her to a local hospital for a CBC where we initially learned just how bad her numbers were just as we painfully suspected. It was not until the children’s hospital called an hour later that our nightmare was about to become her reality.
“Tessa needs to come in today. It is clear that she has leukemia and that things are moving quickly. Plan on staying for at least a week to start with, and we will go from there.”
We knew this was coming. We had nine months of trying to prepare for this day. But never in one thousand years would it ever make that call any easier to receive. Never.
I remember this pain–that same pain that snuck into our lives before. I remember how it rocked our world. I remember how it suffocated us. But I also remember that it never destroyed us because we were far too strong. And today, even though my heart is broken, we are overflowing with that same strength and more. And while fear is lingering, we promised her we wouldn’t give into it.
We arrived around 4 p.m. If anyone knows Tessa at all, then they know she is a sweet yet sassy diva princess, but she was a rock during all of the initial labs and all other things mandatory. She was flirting with the male surgeon resident doctor and making best friends with the night nurse. She is definitely helping to numb the pain because she is being herself. She is amazing.
Last night we slept little. Tessa needed a platelet transfusion while she was sleeping. Dan and I haven’t said much. At some point in the middle of the night, curled up on my new twin sized couch-bed, I was ready to throw up. Her daddy is keeping to himself, but staying right by her side.
Tessa is scheduled for surgery this morning to have her central line placed. She will more than likely get a spinal tap while she is under to rid the spinal fluid and fluid around her brain of hidden blast cells. Today they will learn what kind of leukemia she has and move forward. We will meet with the doctors to discuss chemotherapy, and she will begin treatment soon.
I will update as I can, probably without pictures for now. We are learning as we go and getting all kinds of information. Please know that she is doing well considering everything that is going on. She is also in great hands.
Thank you for all of the love, prayers and support extended to our family during this difficult time. We are so gracious for everything.
She can do this and so can we.