WDSD 2017

Today is the 12th anniversary of World Down Syndrome Day (WDSD).  It is a day to celebrate the lives of those born with a third copy of their 21st chromosome, which is why it falls on this day (3/21).

More importantly, it is a day to commemorate the achievements–big and small–of those born with Down syndrome. A day to share that our loved ones with Down syndrome are people with goals and expectations who can greatly contribute to the rest of the world; that their lives are incredibly meaningful and valuable.

March 21 is more than likely an ordinary day for most people, but for those of us living in the Down syndrome community it has been described as a day of celebration.  A celebration of life, love, potential, hope, inclusion and acceptance.  Today we encourage unlimited possibilities in the futures of our children.  We are more proud than ever to share how Down syndrome has touched our lives.  We stand together to remind everyone that we are a strong community based on a sense of togetherness that is moving mountains.

People may honor World Down Syndrome Day in different ways.  Some people wear brightly colored or mismatching socks, while others wear blue and yellow. Some perform random acts of kindness, share videos, photos or blog posts. Some may not acknowledge or celebrate the day any differently.  All of which is just fine.

As for us?  We will be taking blue and yellow treats to my daughter’s annual IEP meeting which happens to fall on WDSD this year.  On a day where inclusion and acceptance takes the global stage, we will be attending an IEP meeting expecting the same for our daughter (thankfully, we are in a place where that happens). How’s that for irony?

Please know what this day may mean to many people out there like me.  Most of us long for the same opportunities for loved ones who carry an extra chromosome–equal opportunities and the chance to show what they are capable of.  A life without boundaries where they are encouraged to dream big and flourish; one where a chromosome does not solely define a being.

Do you know someone carrying an extra chromosome?  Maybe you are a parent, sibling, cousin, teacher or a friend.  If you could tell the world something about the person you know with Down Syndrome, what would it be?

I would say this:  Tessa is a remarkable person.  She is not more or less because she has Down syndrome.  Tessa is genuine, smart and funny; and she has unknowingly taught me a great deal about kindness and compassion.  

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To learn more about World Down Syndrome Day, please visit https://worlddownsyndromeday.org/

You can also make a $21 pledge at Ruby’s Rainbow to help support higher education of young adults with Down syndrome by visiting https://321pledge.org/

Happy World Down Syndrome Day!  

*This post is a collective post of past writings about World Down Syndrome Day on this blog. 

Dear Tessa…

Dear Tessa,

I know.  Where have I been? We last left off with me trying to desperately save our beloved cat Jack that we had for a mere two days.  Then I left you to sit with that cliffhanger for a really long time; which was pretty uncool of me.

Here is how it went down for Jack…

I went out to check on him at 5:30 the morning after I–ok fine, Dad–had given him his vaccine.  And let me tell you, Jack looked terrible.  It was clear that he was not going to make it so I left him there to pass. After I got you on the bus at 7:15 a.m., I went to put Kendal in the car.  I decided to check on Jack one more time.  He was gone.  I picked him up to move him to a proper resting place, but was horrified to find that upon picking him up, full rigor mortis had set in–like straight through his tail.  I can’t un-feel that.  There is nothing pleasant about that.  I had a stiff cat in my arms (*shutters*) that I was trying to shield from our resident cat-loving three year old.  A dead cat is dramatic enough for me without Kendal’s knowledge of it.  So back into the box he went until Dad could come home and help me out later that day.

I admit it…we straight up lied to you about Jack’s whereabouts after that. We told you that he went to cat therapy at the vet so that he could get better; hoping that one day you guys would just forget about him. Cat-freaking-therapy. It worked for a while.  But your sister, with her exceptional memory, brought Jack’s name back out the other day and we had to come clean…well, sort of. We said that Jack was so sick and the therapy just was not helping him which led to his unfortunate death.

Oh and remember how I said there would be no more cats?  I lied about that, too.  You will come to realize one day that we have told many white lies throughout your childhood.

R.I.P. Jack.  The end.  You and your sister are both fine, and I now realize that I went to great lengths to shield your hearts from something you were both okay with in the end.  Boy when I am on, I am really on in this motherhood business.  But other times, I am so far off.

How is everything else?  For anyone else who asks, I use many phrases that involve swear words to describe life as it has been the last few months.  Take that for what it is worth.  There have been many ups and downs, and most days feel like we are just entering a boxing ring with a defending world champ.  But we battle on because that is what we do best.

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Kendal’s face is all of us right now…

I can’t believe I almost forgot this–you have glasses now!  I mean you definitely hate them, but they sure are cute.  So far they have only had to be repaired once, which isn’t too bad considering how much you detest them.

In other news…you have a brand new baby cousin who is too cute for words, we had our first snowfall at the new house and we spent some much needed time as a family in the Dells last weekend for a family Christmas gathering. You gave us quite a scare when we had to get your labs drawn unexpectedly the end of last week, but all was well with your results.  Always full of surprises Miss Tessa Jo.  wp-1481308607512.png

Of course there is so much that I did not cover.  In time, though.  Right now we are playing a never ending game of catch-up in everyday life while trying to get ready for another beautiful Christmas.  More to come soon…

Love, Mom.