About

Welcome!

Inspired by the birth of my beautiful daughter Tessa Jo who was blessed with an extra 21st chromosome, TRISOMY TWENTY-ONEderful was created in 2012.  I have graduated from a make-shift webpage/”blog” where it all started.  I was moved by Tessa [or Buggy, Bug, Silly Head, etc.--all of which are nicknames you will often hear me call her by] to share our story and invite others to follow.  I want to tell people that an extra chromosome is anything but tragic.

My husband Dan and I met in 2006 and were married in 2010.  We live in a small southwest Wisconsin community and that’s where we will always be.  That day I married my best friend and also officially received a stepson, Casin, whom you will hear much about in the blog.

A great place to start on TRISOMY TWENTY-ONEderful is to visit Tessa’s Birth Story.

This blog is a vault of my thoughts and, of course, the daily adventures of life with Tessa and the rest of our family.  Here you will read much about our life with Tessa and how her Down Syndome has made a big impact on all of us.

Enjoy.

“Those who don’t perceive beauty in the face of a person with Down Syndrome are blind to all beauty or are so fearful of difference that they must at once turn away from every encounter with it. In every face there is some precious aspect of the divine image of which we are a reflection, and if you look with an open heart, you can see an awesome beauty, a glimpse of something so radiant that it gives you joy.”

~Dean R. Koontz

 

7 thoughts on “About

  1. Becky, good to meet you yesterday at the Mineral Point Book Fest. I just read 47 Strings to my six-year old. It was great! We then went to Google images and I showed her images of kids with Down’s Syndrome, so she would know what we were talking about. Turns out, she knows other kids with it at school, but didn’t know what it is.

    There are two chapters in White Coat Wisdom of special interest to parents of children with disabilities: Psychiatrist Darold Treffert’s, where he discusses how much influence parents can have on the kids and Dr. Dennis Costakos, a neonatologist, who discusses acceptance of disable kids and how it varies.

    Best,

    Steve Busalacchi

  2. Praying for your daughter. My daughter has Down syndrome and had cancer and my organization Wisconsin Upside Down offers help to families with a Down syndrome and cancer diagnosis.
    Hoping things work out with Philly. It is a very well respected program. If you are ever interested in a book signing or reading for Wisconsin Upside Down-we’d love to have you. I can be contacted at 262-443-8690 (Robbin Lyons, president WIUSD.ORG) We will be buying your book!

  3. Hi Becky, your family is beautiful and inspiring. I just watched your 47 Strings video and I can’t get over how sweet your son is – I bet he’s a fabulous big brother. I’m with TLC Book Tours and I’m working on a virtual tour for a book called The Unfinished Child by Theresa Shea. I’d love to tell you more about it but I can’t find contact information for you. Would you please email me at lisamunley@ca.rr.com? Thanks and all best to you and sweet Tessa.

  4. I am looking forward to following your journey. 4 months ago I had my beautiful Ariel who also has an extra chromosome 21. I also am blogging about our experiences too. Loving reading all the other proud parents blogs about our wonderful sunshine children :)

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